Review of last week

Hello. Just wanted to update everyone on Cameron's week and some news that we have recieved from Hopkins.

Cameron started a new medication this past Sunday called Depakote. It has been a bad week for her due to the fact that this medication interacts with her Lamital (a current medication). Cameron normally has a level of 15 on Lamital and it was up to 52 with the addition of the new med. This caused some major problems for her and she missed most of the week of school. As strange as it is when you have too much medication in your system it acutally can cause seizures which is what happenend with her. She was not walking well or talking and was in pretty bad shape. As soon as we got the information on her high levels we took her off of the Lamital and saw immediate improvements.

We also heard from Hopkins this week and got the news that they want to see Cameron for a pre-surgery work up. They are not satisfied with the level of results from the IVIG and do not feel like we should waste anymore time. We have lots of questions of course, but this is what I always thought things would boil down to. We will know soon when we should be heading up there but hopefully it will be in January.

Cameron has another IVIG treatment on Thursday and I am excited for her to get another boost although I do see the impact of each treatment fading somewhat.

Cameron's CNA care will begin soon and I am excited. The individual will be able to work with Cameron on educational items as well as providing her with care. Our other great news is that Cameron recieved a Make a Wish and is getting all kinds of great theraputic items including a touch screen computer with special programs to help with her development. I will update soon as soon as we know more about our next appointment with Hopkins. Much love and thanks again for the support. Shelly