Monday, June 29, 2009

Summertime Fun in 2009

Hello Friends and Family. Just wanted to touch base with everyone to let you know how Cameron is doing. She has completed first grade and is onto a busy summer. The first week out of school Cameron attended a Constraint Induced Movement Therapy Camp (CIMT) in Chapel Hill. Sounds really strange but it is pretty amazing. They actually casted Cameron's good arm (her right side) and they force these kids to use there effected side (her left side) through activities, art, and creative play. It was a wonderful experience for her and for me. I got to spend a week with other parents whose children present the same way physically. I got a lot of great ideas and support from these new friends and we look forward to next year.

We had a week off so to speak and now Cameron is at another Camp (overnight) BTW. I had a really hard time leaving her but I know that these independent experiences really help her grow in confidence and emotionally. I keep thinking about her and just saying quick prayers for her safety. I mainly worry about her tripping and falling so say a little prayer with me.

Once Cameron gets back we are heading to Baltimore for doctors appointments and the Hemispherectomy reunion. This is going to be such a wonderful experience for all of us. My mom, Casey, Cameron, Caroline and I will all be there with many other families that I have talked to alot but never met them or their children. It will be a major information gather session and it should be lots of fun.

Medically Cameron is great. She had an EEG about two weeks ago and everything looked good. Not perfect but good. Dr. Hartman is allowing us to get her off of Keppra completely so this is her last week on it. Then we just have two medications to deal with Trileptal and Depakote. Both of these medications have done well for her with minimal side effects. I feel really good about this and hopefully all will go well.

Everything else in life is moving along. It has been a hard 2009 but there have also been many blessings. In January we lost my precious niece Shelby Nicholson to a tragic car accident. This was a major shock and blow to our family especially her mom ( my sis) and my parents. While I have lost family members before, never has it been so shocking and someone so young. The reality of it has still not completely sunk in and on days when it does it is just very hard. My family has done many things to honor Shelby's memory one of which is a scholarship fund at Woodbridge HS. They gave away the first scholarship this year to a young man who was very deserving. Hopefully, and with God's help each act they preform in Shelby's honor will grant them a little more peace.

A major blessing is that my parents found a perfect home in Jamestown NC and snatched it up. It is very close to our home and I look forward to my dad's retirement and a less hectic lifestyle for both of my parents. That is it for now. Oh yeah, Cameron may end up on Oprah. Cross your fingers. They are wanting to do a story on a kid that has had a hemi so she is in the running but so are many other hospitals and children so we shall see. Also, you can become a follower of Cam's site and get updates when there is one (I'll try to do better). Love to all. Shelly

59 comments:

Nathan, Laurie, Elizabeth & Emily said...

Yay...an update! Praying for Cameron to have a safe and fun time at camp this week!

Jessie said...

Thanks for the Update you guys. We think about you often and will see you soon.

andrea said...

Glad to hear that the first camp went well and hope to hear the same about the second.

Miss you!

Kelly said...

We loved seeing you guys in Baltimore.... hope you get Oprah - she would represent all of the children beautifully. Abby is still talking about Cameron, and a few other kids, so we're definitely going to have to keep in touch. Keep updating.

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Cameron is such a beautiful girl, I´m from Brazil and i get really happy about the recovery of cameron, i have 2 daughter, 4 years and a baby of 8 months and as a mother i can not even think of the possibility of something like that could happen to them. i would like to have informations about your daughter, please . Let me know how is she more often, and congratulations for the incredible mother that you are!!!!!

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Heidy Cortes-Gomez said...

Hello Family, Mi Name is Heidy I am from Venezuela, but soon I'll be moving to NC, (summer 2010), I came to USA about 7 years ago, because I have my Daughter Mafer who is almost 8 years old, she got a mayor stroke when she was born and even when I can think that it was terrible for my girl and for us, I have to show you my admiration and respect for your little girl and when I do see her I am seen my own daughter because of the body problem... Cameron's body side is left, my daughter is the right side, I really would like to know a little bit more about that camp because it really sound very helpful, and why not, in the future maybe we could share our experiences and together pray to say THANK YOU LORD FOR YOUR INCREDIBLE LOVE, I am staring to write a blog about Mafer and my other kids but it is in spanish, www.creciendopormishijos.blogspot.com. because as you, I would like to share with the world the incredible miracle that my daughter is too. God Bless you!!!

Shawn said...

I hope this blog is still checked even though it hasn't been updated in some time...I heard you all on the Mike Gallagher show today and my heart leapt into my chest. We have a daughter with brain damage and other affectations from a reaction to her MMR vaccine...she is essentially operating on "half a brain". Imagine my surprise that I just happened to catch the last few minutes of that hour on the radio and heard your story. Perhaps a blessing...we would love to correspond with you if possible. I know you were also featured on TV so I am sure you are busy, but if/when you have time we would love to hear from you. What a miraculous story...thank you for sharing. We can be reached at shawnckelleyrealtor@gmail.com or drslawson@gmail.com Our daughters' name is Julia and her blog is located at http://juliagrimesjourney.blogspot.com/ Thank you and God Bless!

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Mark Imisides said...

I just came across your daughter's story recently. We have a daughter with an Aquired Brain Injury due to hypoxia. She turns 4 this December. We have been told thgat she will never lead a normal life.
My question is about the therapy that Cameron received. Who prescribed it, and may we have their contact details please? Our biggest concern is that here in Australia no one knows quite what to do for her therapy program. We get different opinions, and we don't know what to do. The frustrating thing is that we can see that she DOES develop if trained properly. I have been able to train her in a couple of areas with some therapies that I just thought up myself. But I would far rather get a program from someone who knew exactly what to do.
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Alex Amitrano said...
This comment has been removed by the author.
Alex Amitrano said...

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