Hey everyone. We have a couple of dates we wanted to share with everyone.
First, our church Jamestown United Methodist in J-town is having a Prayer Service for Cameron and our family on June 12th at 7pm. This is open to everyone and if you are able to attend we would love to see you there.
We also have a date for Cameron's golf tournement which will be on Friday September the 14th with a 9:00 start. Please save the date. We will be sending out invitations and providing more details on the site as we get closer to September.
Finally, many of you have asked about contributions for Cameron's benefit. An account has been set up at our church and I have the information below. Thank you all for your continued support and prayers. Love the Motts.
Make checks payable to Jamestown United Methodist Church or JUMC
P.O. Box 339
Jamestown, NC 27282
Attention: Darlene Davenport
In Memo section identify: Caring for Cameron
Friday, May 25, 2007
Tuesday, May 22, 2007
Update on Cam's
Hey everone, Just wanted to let you all know that things are starting to sink in for us and I believe that Casey and I have acceptance of what will happen in a matter of weeks. We still have questions that are popping up and continue to be in contact with Hopkins and they have been very helpful.
The week after we found out about the surgery I got Cameron's hair cut in a very short bob. It is really, really cute and I am glad that we did this. The doctor will only shave the incision site which resembles a question mark. Because of the way we part her hair and b/c I have heard that Dr. Jallo has great scars I hope that her sites will not be very noticeable.
Cameron continues to have 4-8 seizures a day but has a very bright disposition. She really does not have an awareness about her seizures which I also believe to be a huge blessing. We have been injury free and I hope to keep it that way. School is going well and I hope to know soon what enviornment she will be in next year.
We have a wonderful group of friends here that are planning a golf tournement fundraiser for Cameron's benefit and as soon as I know a date I will let everyone know. It will be sometime in September. It will be called "Caring for Cameron" and has been such a wonderful gesture from our dear friends. Many of you have asked about making contributions and I will post the information soon. Our church will be taking care of this for us which is also a wonderful blessing. God is good and we have truly put our trust in him so that the worry and fear do not overwhelm us. Thank you all for your prayers and we will keep you posted. Take care. Shelly
The week after we found out about the surgery I got Cameron's hair cut in a very short bob. It is really, really cute and I am glad that we did this. The doctor will only shave the incision site which resembles a question mark. Because of the way we part her hair and b/c I have heard that Dr. Jallo has great scars I hope that her sites will not be very noticeable.
Cameron continues to have 4-8 seizures a day but has a very bright disposition. She really does not have an awareness about her seizures which I also believe to be a huge blessing. We have been injury free and I hope to keep it that way. School is going well and I hope to know soon what enviornment she will be in next year.
We have a wonderful group of friends here that are planning a golf tournement fundraiser for Cameron's benefit and as soon as I know a date I will let everyone know. It will be sometime in September. It will be called "Caring for Cameron" and has been such a wonderful gesture from our dear friends. Many of you have asked about making contributions and I will post the information soon. Our church will be taking care of this for us which is also a wonderful blessing. God is good and we have truly put our trust in him so that the worry and fear do not overwhelm us. Thank you all for your prayers and we will keep you posted. Take care. Shelly
Thursday, May 10, 2007
Surgery June14th
Wow it has been a long time since I have posted. The past month has been very busy and as you can tell from the title we have news. We received a call from Hopkins on Tuesday and they are ready to proceed with Cameron's Hemi. Dr. Andermann from Canada felt like Cameron did not have bilateral Rasmussen's and that althought there is activity on the left side she would benefit from the Hemispherectomy. So..................I think Casey and I were both in shock to say the least. This however is the only news that we really wanted to hear. The other option would have been devastating.
Cameron has really had a struggle over the past month or two. Her seizure activity was getting more intense and more frequent even with the addition of a new medication. We are averaging about 6-8 per day, in addition to lots of focal seizure which are very disruptive to Cameron in a learning enviornment. The medication that we recently added was our last medication to try. We were having to think about recycling medications that we already know don't work or that only worked for a very short time. This was a scary thought as well.
We are now in the planning process and trying to understand the details of the surgery and rehab. The entire process will keep Cameron up there for atleast one month if all goes well which I believe it will. I know that this is in God's hands and that these doctors did not make this decision lightly. Nevertheless, it is scary. Cameron is a survivior and I know that to have a more coherent little girl will be an incredible thing. I can only imagine.
Cameron had what we hope to be here last IVIG treatment today. Everything went very well once they got her IV started and a good friend Stephanie brought some lunch and company for several hours which made the day fly by. We are truly grateful for the support and love of so many and we know that your concern for Cameron is on your minds. We will post again as more details arise. Love you all. Shelly, Casey, Cameron and Caroline.
Cameron has really had a struggle over the past month or two. Her seizure activity was getting more intense and more frequent even with the addition of a new medication. We are averaging about 6-8 per day, in addition to lots of focal seizure which are very disruptive to Cameron in a learning enviornment. The medication that we recently added was our last medication to try. We were having to think about recycling medications that we already know don't work or that only worked for a very short time. This was a scary thought as well.
We are now in the planning process and trying to understand the details of the surgery and rehab. The entire process will keep Cameron up there for atleast one month if all goes well which I believe it will. I know that this is in God's hands and that these doctors did not make this decision lightly. Nevertheless, it is scary. Cameron is a survivior and I know that to have a more coherent little girl will be an incredible thing. I can only imagine.
Cameron had what we hope to be here last IVIG treatment today. Everything went very well once they got her IV started and a good friend Stephanie brought some lunch and company for several hours which made the day fly by. We are truly grateful for the support and love of so many and we know that your concern for Cameron is on your minds. We will post again as more details arise. Love you all. Shelly, Casey, Cameron and Caroline.
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