Sunday, October 08, 2006

Results from Johns Hopkins visit

We got a call on Wednesday from Johns Hopkins on their recommendations from the meeting they had about Cameron this week. They have decided to delay any brain surgery now but she will start to receive monthly IVIG therapy instead--this is what she had during our last stay at Baptist. She will also have another MRI when we have the 1st therapy scheduled which is pretty soon. Also another non-surgical therapy, a chemo drug called Citoxin used primarily to treat MS, is an alternative that they might explore pretty soon as well. While this is not the final solution to the problems we are having with Cameron's seizures, we feel we are definitely in the best hands possible to lead us to the decision about surgery. They want to give theIVIG a chance to see if there is any noticeable improvement but will be open to reevaluating everything if Cameron's condition does not improve or gets worse. God has led us to this place and we will continue to trust in Him that there are better days ahead for Cameron. Thank you again for thinking of us and we are very grateful for all the prayers and support.

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