Counting Down

Hey. The Mott Family is preparing for our trip NEXT week. That is so hard to believe but time has been flying. Cameron is doing about the same and follows the same pattern most days. Here is a sample. She wakes up bright and cheery full of life and wonderful things to say. She can't wait to go downstairs to get her usual grits or cereal. After breakfast (it is about 6:30 or 6:40 at this point) Cameron takes all of her meds. Within about 20 minutes she starts to loose her spunk and energy due to the meds. Then around 7 she gives us a scare with her moring seizure. It is almost funny that it doesn't ever stop scaring you especially when she makes a loud noise. Then we either give her diastat or she takes a 20-30 min nap. Once she wakes up she is off to school. The girl is a trooper to say the least and we are all ready to end this particular routine and start a new one.

Cameron began Hyperbaric Therapy last week and we are doing it everyday this week as well. It is something that Dr. Cave in LA recommended to us long ago and thought that it would benefit Cameron prior to surgery. It basically gives her oxygen under pressure which allows it to absorb more easily into her system. There are a list of benefits and hopefully this will strengthen her system to allow everything to go as well as possible.

While we are up at Hopkins there will be a family coming about the same time whose daughter Tessa will also be having the Hemi on June 21st. She is only 17 months old and has a different disorder but it will be good to meet them during our stay.

Much love - The Motts.