Hello our dear friends!
All is well here in Baltimore. Cameron looked good today and they said she is doing well and has been the whole time. She is still heavily sedated to keep her still. Her head will remain on her left side through sometime tomorrow before they move her to "mid-line" or on the back of her head. This time just on the left is to allow fluid to build up in her empty space so the other side does not shift and cause damage. The Hopkins staff is very thorough in everything they do and the slower they take things the better to assure Cameron's safety. She will be in the PICU through the weekend and we might move to a normal room Monday. If I can figure out how to do it I will post a picture of her current state at some point for those who can stomach it. Her eyes are swollen shut right now but the overall swelling is not as bad as we had anticipated. She has slight bruising around her eyes but none elsewhere that we can see now. Of course there is a large bandange covering her wound and the top of her head.
We are back at the hotel again tonight and this might be the last night the rest of the family is together here at the same time. When Cameron is awake we will be at her beside for sure--shifts will start then. Since they talked about moving her to midline we assume she will wake up some tomorrow but are not real sure yet. If the swelling in her eyes comes down she surely will open them as she has noticeably tried to no avail so far. I can feel her energy and strength so the days ahead will be more challenging to keep her as still as possible as they begin to eventually back off the sedation. We met the head of the rehabilitation team today and he was really nice as everyone else on the staff has been--some of the rehab will start once she is moved to a regular room--the majority will be when she is eventually moved to the Kennedy Kriger Institute which is accross the street. My brother Joe and I took Caroline over there to their lobby today--they have an awesome saltwater fish tank there and also a frog tank and other nice kid's things--Caroline had lots of fun of course.
There is a large statue of Jesus in one entrance to the hospital and Caroline prayed to him today for Sissie's safety. Cameron's prayer card that Stephanie Fischer made is sitting at his feet next to the flowers other people have placed there. What an awesome symbol of who has his arms around us in this journey. Thanks for your continued prayers!!!
Much love, themotts
Friday, June 15, 2007
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41 comments:
Dear Mott Family,
I was sharing with my neighbor about Cameron's disease and surgery. She almost cut me off mid sentence to tell me that a family who plays b'ball with her son has a 15 year old son who was where Cameron is right now earlier in his life. At age 15 he is enrolled in a regular school taking regular classes, functioning, to the best of her observations, as a typical 15 year old and talking on his cell phone with his girl friend. I know every child is different but he is a miracle since some of the things others have shared with me about Cameron's possible future were what this family was told. SO, my prayer is that God will continue to lovingly hold you all in the palm of His hand through the days ahead. Love, Barb Schott
Thank you so much for the updates. Love to all.
Hi all,
This is Stacy Nicholson, Shelly’s sister. I just wanted to say thanks to all of you for the prayers, love and support. I can’t begin to tell you how much it means to all of us. Cameron is such a trooper. She amazes me everyday. It is about 7:40am on Saturday, Shelly and Casey are back at Hopkins and mom and I will head over whenever sleepy girl Caroline wakes up. Please continue to pray for our little Cameron. She is doing very well but still has a long road ahead of her. Casey or I will update the blog later today.
Love,
Stacy
Cameron is definitely surrounded by God's awesome love. We will continue to lift her in prayer. It's great to hear such good reports.
Love,
Scott, Vanessa, Grace, and Molly
Thanks for the positive update. We are thinking of you constantly. Our prayers will be for a wonderful moment when Cameron can open her eyes.
Much love, the Wallaces
We are keeping all of you in our prayers. I'm glad to hear Cameron is doing well. We will keep forwarding updates to the MOPS group.
Much Love,
Melissa Bryant & family
Every time I read you updates, I am lifted up by how well everyone is doing, especially Cameron. Love to you all, Kristi
What a joy to read these positive, uplifting updates. So, so glad things went smoothly with the surgery and in these earliest days of recovery. I'll continue to watch the site and hope rehab goes well also.
It's such a blessing to read the updates on how well the surgery went and how Cameron is doing! All of us are so thankful that we can share in and support you with prayers, and we praise our Heavenly Father for hearing and receiving each and every one of them! We continue to send our love and prayers to you all, and especially to Cameron for her continued recovery! There are many angels amoung us and one of them is a beautiful, blond hair girl named Cameron! Casey, enjoy Father's Day with your two little girls! Thanks be to God, our Heavenly Father, for his love and grace that is so, so good! Love, Mark, Nelkis, Robert & Ashley
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