Surgery June14th

Wow it has been a long time since I have posted. The past month has been very busy and as you can tell from the title we have news. We received a call from Hopkins on Tuesday and they are ready to proceed with Cameron's Hemi. Dr. Andermann from Canada felt like Cameron did not have bilateral Rasmussen's and that althought there is activity on the left side she would benefit from the Hemispherectomy. So..................I think Casey and I were both in shock to say the least. This however is the only news that we really wanted to hear. The other option would have been devastating.

Cameron has really had a struggle over the past month or two. Her seizure activity was getting more intense and more frequent even with the addition of a new medication. We are averaging about 6-8 per day, in addition to lots of focal seizure which are very disruptive to Cameron in a learning enviornment. The medication that we recently added was our last medication to try. We were having to think about recycling medications that we already know don't work or that only worked for a very short time. This was a scary thought as well.

We are now in the planning process and trying to understand the details of the surgery and rehab. The entire process will keep Cameron up there for atleast one month if all goes well which I believe it will. I know that this is in God's hands and that these doctors did not make this decision lightly. Nevertheless, it is scary. Cameron is a survivior and I know that to have a more coherent little girl will be an incredible thing. I can only imagine.

Cameron had what we hope to be here last IVIG treatment today. Everything went very well once they got her IV started and a good friend Stephanie brought some lunch and company for several hours which made the day fly by. We are truly grateful for the support and love of so many and we know that your concern for Cameron is on your minds. We will post again as more details arise. Love you all. Shelly, Casey, Cameron and Caroline.